thyroidism's topics - tribe.net

hypo-thydoidism and eye deteriation

Red Annie — Mon, 19 Feb 2007 19:51:43 GMT

Anyone out there having trouble with their vision becasue of their thyroid? I read somewehre that it can affect vision. Mine has been going down hill since I was diagnosed.
Any way to curb it?

posted in thyroidism - 4 replies

a few wonderful links

langelbleu — Thu, 25 Jan 2007 05:21:02 GMT

In my travels I have found a really helpful site
http://www.stopthethyroidmadness.com
I talks about the need for adrenal support and the use of desiccated thyroid instead of synthetic T4.

posted in thyroidism - 1 reply

Grave's Disease general questions

muppets78 — Sun, 10 Jun 2007 20:18:44 GMT

Does anyone who has Grave's know if we're candidates for laser eye surgery? One opthamologist told me I was, another said I wasn't.

If any of you have had it for many years have you noticed that it gets better w/ medication, I-33 treatment, a special diet or anything else that might improve it?

Have any of you had eye surgery to correct it or have heard any positive or horror stories of anyone that has had it? It sounds risky, but I have been contemplating it.

Does anyone else have problems w/ tearing up during the day due to Grave's? Do you do anything special to correct it?

posted in thyroidism - 0 replies

radioactive iodine treatment?

muppets78 — Mon, 09 Jan 2006 22:16:09 GMT

(sorry if there's already a thread on this topic)

I'm considering getting the radiation treatiment done for my hyperactive thyroid (of 3+ years) very soon. I have horrible insurance coverage and only found 1 facility that would even accept this plan.

If anyone here has had this procedure done, could you give me a little information on it? I'm primarily interested in knowing a few key things... such as the price of the procedure (including any meds that go along with it)... and whether you have to take pregnazone (spelling?) before/during/after the treatment, and if you gained significant weight from the pregnazone?

Any guidance is much appreciated.

posted in thyroidism - 5 replies

When and what kind?

The Japxican — Tue, 18 Nov 2003 22:58:25 GMT

I ws suprised to see a tribe for Thyroidism. I knew I wasn't the only one out there who has Hypo-thyroidism. I just never met anyone else who has it.

I was diagnosed ten years ago and was automatically put on levothroid without much explanation why. Ever since then, I've been looking around for information off and on.

posted in thyroidism - 12 replies

thyroidism and snoring

John — Sun, 18 Jan 2004 17:01:34 GMT

Does anyone have a problem with snoring? I've always been a snorer, but since I have developed the thyroid problem, I now snore worse (my wife has kicked me out to my own room). If so, have any of your doctors recommended a sleep study? I am asking this because I was just at my Dr the other day and he said that my TSH levels were good with the Synthroid I am taking. But I still feel tired and can't concentrate or get motivated on anything, plus I am depressed half the time. I told him this and he gave me a test and thinks that I have ADHD. My wife and I agree that he has to be wrong because I never had these problems before. How do you just develop ADHD? Anyway, he switched me from Celexa to Wellbutrin and put me on Strattera. I guess I will give it some time and see. But anyway, back to the snoring, has anyone else developed sleep apnea from your thyroid problem?

posted in thyroidism - 8 replies

What do my lab results mean?

Renate — Thu, 22 Feb 2007 14:10:39 GMT

I have had Grave's Disaease for 6 years now and have always left it in the hands of my doctors. So I do not know what the labs mean. I kinda have an idea though. TSH normal levels are .350-5.0. Does hyperthyroidism occur when you are below the .350? My level results were .869 a few days ago. I know that is in the normal range, but where exactly do I fall in that range. Can anyone help me to understand this better? I just do not feel well and don't know why. If it's my Grave's Disease or something else. So any advise or links to where I can get some answers would be great! Thanks!

posted in thyroidism - 1 reply

Moved to Tucson. Need a doc.

xtinemac — Mon, 29 Jan 2007 18:52:30 GMT

Anyone on this tribe live in Tucson, AZ? If you go to a doc that you just love please let me know. I will have Cigna heathcare in a few weeks and feel like I am just jumping in blind to a pool of doctors that might not have any knowledge of dealing with a person without a thyroid.

Any help is appreciated!
Christine

posted in thyroidism - 0 replies

Surgery anyone?

Eden — Sat, 25 Dec 2004 22:25:19 GMT

Hey all. I'm new to this tribe, but I've had my diagnosis for Hashimoto's for a long, long time. It looks like I'm heading for a thyroidectomy pretty soon, and I'm trying to collect anecdotal experiences. I know everyone's experience is different, but I don't believe the whole "You may experience mild discomfort for a few days" crap. They slice open my throat, root around, and cut something out. I'd say that's well past mild discomfort.

Anyone had this surgery? Anything I should know about? I've heard about facial bruising and difficulty lifting your head for a while after surgery, and I know about the possibility of parathyroid gland and vocal chord damage...

It blows, but at least I'll have a badass scar.

posted in thyroidism - 5 replies

alternative treatment/diet info?

janathemama — Sun, 15 Jan 2006 23:24:45 GMT

Hi All! My best friend has had a partial thyroidectomy and is feeling permanently tired and sluggish. She is also gaining weight, which is troubling her.

Am I right in thinking of her like a hypo type now?- I offered to do some research into diet and or alternative therapy for her to help alleviate her symptoms,- or prevent further complications in later life, due to mismanagement now.

Anyone got any ideas, help? thanks in advance, jana

posted in thyroidism - 2 replies

Right time for the right vitamin....

xtinemac — Wed, 01 Mar 2006 21:43:30 GMT

As if just taking a pill at the same time every single day is not annoying enough, we must also be concerned with what we are mixing it with. Of course we take our thyroid meds on an empty stomach. I have also read that soy and dairy must not be consumed within 4 hours of taking the pill. Annoying! And hard to keep track of! (well, for me!)

Here is my issue:
I do take my pill every morning. My question is...when do I take vitamins (and which multi vitamin!?) to get the maximum results? At bedtime? How much calcium should I be taking? And when? And, a special question for the ladies.....once a month my energy is low low low due to my Aunt Flo, should I add B12 or iron??? AND WHEN?

I am familiar with the ThyCa site. Love it. But sometimes I need to ask questions to real people instead of going thru all the research. I tend to get sidetracked!

Thanks everyone! It's tough not having a thyroid!

posted in thyroidism - 1 reply

Best information site

Nibbles Fuzzycheeks — Fri, 21 Oct 2005 08:38:53 GMT

A good place to find information on thyroid, and other endocrine
disorders, is www.thyroidmanager.org . Its highly technical, but it is
pretty readable, even for the average lay person.
Fairly easy to search also.

Written by doctors, and is generally accepted easily as a resource by our doctors, in discussion.

True, much concerning thyroid is still under debate, as so much is not yet known. Even on this site, most of us will find things we disagree with. But ya gotta start somewhere. ;)

posted in thyroidism - 0 replies

new member questions

angieibarra — Tue, 18 Oct 2005 19:36:00 GMT

hi, im a new member. i was in the hospital a month ago with complications with my auto immune disorder, ITP, and in the blood tests done there i was told the thryroid #'s were very low. no one seemed concerned but i do plan on going to the doctor in a couple of weeks to talk about this.

i have been blaming these symptoms on my blood disorder but could the be from my thyroid not working properly?

my hair is falling out(they said it was because i just gave birth but my baby is 3 now and its still falling out)

my scalp hurt to touch

i am super tired almost all the time

i have always been overwieght but i have gained a tremendous amount of wieght with out changing my eating habits.

i know nothing about the thyroid therefore i dont know what questions i should ask my doctor. i would appreciate any advice

thanks, angie

posted in thyroidism - 3 replies

thyroidism vs. tofu?

jeremypearl — Sun, 27 Jun 2004 20:13:42 GMT

I'm new to this tribe (as of today, and specifically for this question):

Do you tribesters have discussions about soy and thyroidism? I've heard now for years, and recently read a detailed article about how too much soy can badly effect the thyroid gland, and lead to the side effects of chronic fatigue, metabolism fluxuations, and all the other stuff associated with thyroid disease.

Are there some good summaries of this issue that you know of? Can you post them? I think everyone on this tribe should no about this topic if they (you) don't already...

Thanks!

JazzK@!

posted in thyroidism - 8 replies

Hypothyroid Horse

karina — Mon, 17 Oct 2005 06:36:07 GMT

I have a horse whom is hypothyroid - for the past 17 years. I've done a lot of research on this and I wanted to say thanks for the existance of this tribe. Much love, Karina

posted in thyroidism - 0 replies

Resources

Amanda — Sat, 22 Nov 2003 07:58:38 GMT

For new members/patients... I thought it might be a good idea :)

http://thyroid.about.com/mbody.htm

http://www.ngdf.org/

http://www.thyroid.org

http://www.thyroidmanager.org/

posted in thyroidism - 4 replies

my dog now has a hypothyroid condition too

Shok — Fri, 13 Feb 2004 07:52:38 GMT

Yep, my girlfriend took Miss Pooch-A-Rilla to the vet and she has the same condition and I.

Ever hear of this before?

posted in thyroidism - 3 replies

connection between thyroid illness and alien abduction?

Shok — Fri, 13 Feb 2004 07:51:26 GMT

have you heard of this before?

posted in thyroidism - 4 replies

Thanks for the thyroid tribe.

John — Sun, 28 Dec 2003 01:59:09 GMT

I was just diagonosed with hashimotos disease (autoimmune thyroiditis) two months ago. This summer I was hyperthyroid and miserable. Now I have switched over to hypo. I just started taking synthoid but really think some serious adjustments are due. I sleep alot and I can't keep my mind on anything for any length of time. I hope this gets better as the Dr. adjusts my meds. I am glad to join a group of people who can relate.

posted in thyroidism - 3 replies

way to go!

hybridity — Fri, 24 Oct 2003 12:09:49 GMT

... a while ago, i thought, "i should start a thyroid tribe", and never got my ass in gear. (yes, i'm hypo ;) ~ it's good to see someone did!

it's one of those illnesses that's so hard to get good info, support, and doctors for, so it's great to be able to connect with each other for advice/support/referrals/etc. i know i'm just brimming with random information at this point....
:)

cheers,
fi

posted in thyroidism - 8 replies

finding doctors

hybridity — Sat, 10 Jan 2004 03:02:52 GMT

i wanted to post these links for those of you who are looking for good doctors. they are lists of thyroid doctors whose patients have recommended them, and what the patients have said about them.

http://www.thyroid-info.com/topdrs/index.htm

and

http://thyroid.about.com/library/weekly/blnewdoc.htm?terms=thyroid+docs

posted in thyroidism - 3 replies

Chronic fatigue issues?

marym — Mon, 08 Mar 2004 22:37:52 GMT

I was diagnosed a year ago (this past weekend was my anniversary) w/thyroid cancer and had my thyroid removed w/surgery +radiation. Physically I'm back in shape - lost all the weight I gained (yoga +the Zone diet) and the scar on my throat is hardly visible (lots of cocoa butter + sunscreen). But I still need 10-12 hours+ sleep/night. I'm taking a medical leave of absence from my job because I'm that exhausted all the time, even tho my levoxyl strength keeps going up every other month.

Is this situation familiar to anyone? Anything I can do to combat the constant tiredness?

posted in thyroidism - 1 reply

yahoo group for men with hypothyroid

jeff_junker — Fri, 23 Jan 2004 13:50:38 GMT

2 years ago i started a yahoo group for men with hypothyroidism. I haven't been on it activly in a while, but there are still a bunch of active members that are really helpful...plus i posted a lot of helpful reasorces for any men with thyroid diease. i don't remb er the exact address...but if you type in groups.yahoo.com ...and type in the search engine hypothyroid men...it will xcome up. Hope i was helpful.

Oh by the way if you want info about me i was 17 when i was diagnosed & i'll be 30 in 2 months. I have also been diagnosed in the last year as having allergies,ashma, & carpol tunnel.

posted in thyroidism - 0 replies

finding doctors

hybridity — Sat, 10 Jan 2004 03:00:26 GMT

posted in thyroidism - 0 replies